Inside I like all

Inside I like all

I am 30 years old. 14 I am confined to bed. FOP is my life. Despite severe physical limitations, I don't feel disabled. but sometimes I really lack a good education,some database to be all on one level. periodically I have a lot to write and speak correctly, and periodically, on the contrary I like in a vacuum and no words and clear sentences. in such moments I feel like a small person I am working hard, slowly and persistently, using different methods. for example: learning English - for me it is difficult, but it's more than just learning the language for communication, this is the path to further development. new knowledge horizons. a new level of development. I can't always explain to others your thoughts, desire. but in the brain all offers clear and understandable.

I'm too shy. but I'm glad when not said too much, I am quick-tempered, but not all. I try to hate the fact that I don't like. God gives me the strength to endure and live. we always choose for ourselves how to act in a given situation is good or bad. every time this choice stands before us. need to think it over and then it's easier to make the right decision. do no harm as possible neighbor. scary for me to be indifferent and morally dead. I can be hard or soft, but I find it difficult to refuse requests. I still live by the grace of God. because I have a rare genetic disease fibrodysplasia progressive . every year it kills me. depriving movements, turning into a statue.

I like a bomb. delayed action. an explosion can occur from the slightest impact or virus. and the bone will start me wrapped in your cocoon faster and faster. My 29 years 30 I didn't know anything about his illness and the lives of people with my diagnosis, but given was the 29th year of my life has changed everything: now a bunch of us. and we are together, we are United by the FOP and hope to Defeat this terrible disease.

Today overseas global specialists successfully make his case against the FOP, giving us hope. And each of us conducts his personal war.
I prefer to know the enemy in the face, it is already an advantage. I know my struggle is endless-it until the very end, look at this sky, walk in the rain, to love, to do good, just to support each other. God gave me faith and inexhaustible optimism, perseverance. it really helps in my complex fate. When I'm bad, and this is repeated over the years, more and more, I know that God is near. I am calm. I know that I will soon lose the ability to speak and my ears will lose hearing. it is inevitable. but I am calm. I am not afraid. God will be with me.
I am a member of the NGO "Living with FOP in Russia and a member of the international organization http://ifopa.org.

our organization is "Living with FOP" sets specific goals:
It is the organization of a unified health care center or more - for example, in Moscow, St. Petersburg and Siberia. It is very important for us. to date, the most experienced in Russia specialist FOP examined only 15 people. and we have more than forty.

The urgent task is creating a dental base to help patients FOP. as illiterate dental intervention is fraught with complications, up to ossification of the jaws. in July of this year, we are our own organization and our loved ones held the first international meeting patients from Russia and the near Abroad with doctors of the world level other F. Kaplan of the U.S. and other Works. Morhart from Germany specializing in FOP.

Now we start preparing for a new meeting patients and doctors, attend our meetings and our doctors is also one of our goals is to share experience with foreign experts.

I believe that we will succeed and will create the necessary framework to help patients FOP in Russia. I believe that we will find interested physicians for cooperation and our members will be able to take supporting courses of treatment without fear for the consequences of medical intervention. I believe in our victory-God gives us trials but He also gives strength and ability to overcome them.

I don't regret chained to the FOP, it is my way. I love life. the soul has no limitations of the body. the soul must be developed and nurtured. to love. I ask all parents are faced with health problems of their children, to love their children, educate them in healthy individuals.
I hope that our society will Wake up and be friendly to your loved ones with any deviations from the General standards.

Inside - I is the same as all, I feel pain and joy, worry about family and friends, watch movies and listen to music, I live. I have many friends, God is generous to me. I write a little poetry and journalism, I love walking. I'm happy!

Olesya Radushko
27.10.2014, Kemerovo